Ms Heather Strange

Ms Heather Strange is a PhD student at Cesagene.  Her research is based on a qualitative study of newly-emerging non invasive prenatal diagnosis (NIPD) technologies.  Interviews with a range of clinicians, scientists, patients and parents have been carried out, and the ongoing scientific development and clinical implementation of various NIPD technologies has been tracked.  Heather’s research is relevant within both STS and medical sociology.

Heather’s project has been fully funded by the Welsh Government’s National Institute for Social Care and Health Research (NISCHR) and is supervised by Professors Adam Hedgecoe and Joanna Latimer.

Previously Heather worked as a research assistant at Cesagen.  Research projects included work on: dignity and older people, the ethics of non-medical (social) sex selection, harmonisation and standardisation in ethics, nursing ethics, and the ethics of biometric technologies.  Heather has also worked as a qualitative researcher on Cardiff University’s ‘Forgotten Abergavenny’ community research project and the Department of Health-funded ‘Care Home Organisations Implementing Cultures for Excellence’ (CHOICE) project.  Heather is currently working as a research administrator for Cardiff University’s Support Unit for Research Evidence.

Publications

  • R. Chadwick and H. Strange, (2009) Harmonisation and Standardisation in Ethics and Governance: conceptual and practical challenges, in The Governance of Genetic Information: Who Decides, Cambridge: Cambridge University Press, pp. 201-213.
  • H. Strange and R. Chadwick, (2009) The Ethics of Nonmedical Sex Selection, Health Care Analysis, Vol 18, number 3, pp. 252-266.
  • Strange, H. (2010) Nonmedical Sex Selection: Ethical Issues, British Medical Bulletin, Vol. 94, issue 1, pp. 7-20.
  • Dignity and Older People, British Medical Bulletin (forthcoming).
  • Option Grid: Non invasive prenatal diagnosis.  With Bryan Beattie, Marie-Anne Durand, Peter Alf Collins and Glyn Elwyn (forthcoming).

Conference and seminar presentations

  • ‘Non-invasive prenatal testing: divisions, categorisations and public secrets’. Exeter University Department of Sociology & Philosophy seminar, 15th October 2014.
  •  ‘Noninvasive Prenatal Testing: Pushing at the Boundaries of Screening and Diagnosis’, symposium on Researching (Bio)medicine with Care: Cosmopolitics, Affects and Ethics, British Sociological Association Medical Sociology Annual Conference, Aston University, 11th September 2014.
  • ‘Tracking NIPD: findings from PhD fieldwork’. Sussex University Centre for Bionetworking, Colloquium on Disability Detection and Foetal Decision-Making through Non-Invasive Prenatal Testing (NIPT), 16th June, 2014
  • ‘Non invasive prenatal testing: pushing at the boundaries of screening and diagnosis’.  Cardiff University School of Social Sciences, Medicine Science and Culture (MeSC) research group seminar, 28th May 2014.
  • ‘Non Invasive Prenatal Diagnosis: The Expert’s View’.  Cardiff University School of Social Sciences, Doctoral Conference, 23rd October 2013.
  • ‘Informed consent in non invasive prenatal diagnosis’. European Society for Human Genetics Annual Conference/European Meeting for Psycho Social Aspects of Genetics, Nurnberg, Germany.  25th June 2012.
  • ‘Emerging prenatal genetic testing technologies: ethical issues and the need for empirical research’. ESRC Genomics Network Conference 2012 – Genomics in Society: facts, fictions and cultures, The British Library, London.  April 23rd, 2012.
  • ‘Non Invasive Prenatal Diagnosis: a Social Science Perspective’. Bristol University Centre for Ethics in Medicine, seminar series, 20th February 2012.

Posterpresentations

  •  ‘Harmonisation in Ethics: conceptual and practical challenges’.  P³G Annual Meeting “Harmonization in Practice: A Platform Based on 50 Studies from 18 Countries”, April 26 – 27, 2010. Montreal, Canada,
  • ‘Informed consent in noninvasive prenatal testing’ International Genomics Conference, 13th– 14th September 2012, Radisson Blu, Cardiff.