The Measurement of Health-related Quality of Life in Dermatology – Key References

Background key references

Finlay A Y. Quality of Life Measurement in Dermatology: a practical guide. Br J Dermatol 1997; 136: 305-314

Finlay AY. Quality of life assessments in dermatology. Seminars in Cutaneous Medicine and Surgery, 1998; 17: 291-296.

MKA Basra, AY Finlay. The family impact of skin diseases: the Greater Patient concept. Br J Dermatol 2007; 156: 929-937.

Eghlileb A. M. ; Davies E. E. G. ; Finlay A. Y. Psoriasis has a major secondary impact on the lives of family members and partners. Br J Dermatol 2007; 156: 1245-1250.

Finlay AY. Quimp: a word meaning “quality of life impairment”. Acta Derm Venereol 2017; 97: 546-547.

Finlay AY, Salek MS, Abeni D, Tomás Aragonés L, van Cranenburgh OD, Evers AWM, Jemec GB, Linder D, Manolache L, Marrón SE, Prinsen CAC, Susitaival P, Chernyshov PV. Why quality of life measurement is important in dermatology clinical practice An expert-based Opinion Statement by the EADV Task Force on Quality of Life. J Eur Acad Dermatol Venereol 2017; 31 (3): 424-431.

Finlay AY. Broader concepts of quality of life measurement, encompassing validation. J Eur Acad Dermatol Venereol. 2017;31(8):1254-1259.

Ali FM, Salek MS, Finlay AY. Two Minimal Clinically Important Difference (2MCID): a new twist on an old concept. Acta Derm Venereol 2018; 98: 715-717.

 

DLQI

Finlay AY, Khan GK. Dermatology Life Quality Index (DLQI): a simple practical measure for routine clinical use. Clin Exp Dermatol, 1994; 19: 210-216.

Lewis V L, Finlay A Y. Ten years experience of the Dermatology Life Quality Index (DLQI) J Investig Dermatol Symp Proc, 2004; 9(2):169-180.

Hongbo Y, Thomas C L, Harrison M A, Salek M S, Finlay A Y. Translating the Science of Quality of Life into Practice: What Do Dermatology Life Quality Index Scores Mean? J Invest Dermatol, 2005; 125: 659-664.

Basra MKA, Fenech R, Gatt RM, Salek MS, Finlay AY. The Dermatology Life Quality Index 1994-2007: a comprehensive review of validation data and clinical results. Br J Dermatol 2008; 159: 997-1035.

AY Finlay. Current severe psoriasis and the Rule of Tens. Br J Dermatol 2005; 152: 861-867.

Ali FM, Cueva AC, Vyas J, Atwan AA, Salek MS, Finlay AY, Piguet V. A systematic review of the use of quality of life instruments in randomized controlled trials of psoriasis. Br J Dermatol 2017; 176(3): 577-593.

Ali FM, Kay R, Finlay AY, Piguet V, Kupfer J, Dalgard F, Salek MS. Mapping of the DLQI scores to EQ-5D utility values using ordinal logistic regression. Qual Life Res 2017; 26(11): 3025-3034.

Ali, F.M., Johns, N., Finlay, A.Y., Salek, M.S. and Piguet, V. Comparison of the paper-based and electronic versions of the Dermatology Life Quality Index: evidence of equivalence. Br J Dermatol 2017, 177: 1306–1315.

Atwan A, Piguet V, Finlay AY, Francis NA, Ingram JR. Dermatology Life Quality Index (DLQI) as a psoriasis referral triage tool.  Br J Dermatol. 2017 Oct;177(4):e136-e137.

 

CDLQI

Lewis-Jones MS, Finlay AY. The Children’s Dermatology Life Quality Index (CDLQI): initial validation and practical use. Br J Dermatol, 1995; 132: 942-949.

Holme S A, Mann I, Sharpe J L, Dykes P J, Lewis-Jones M S, Finlay A Y. The Childrens’ Dermatology Life Quality Index: validation of the cartoon version. Br J Dermatol 2003; 148: 285-290.

Beattie P E, Lewis-Jones M S. A comparative study of impairment of quality of life in children with skin diseases and children with other chronic child diseases. Br J Dermatol 2006 155: 145-151.

Salek MS, Jung S, Brincat-Ruffini LA, Macfarlane L, Lewis-Jones MS, Basra MK, Finlay AY. Clinical experience and psychometric properties of the Children’s Dermatology Life Quality Index (CDLQI), 1995-2012. Br J Dermatol. 2013; 169:734-59.

 

T-QoL

Basra MKA, Salek MS, Fenech D, Finlay AY. Conceptualisation, development and validation of T-QoL©(Teenagers’ Quality of Life): a patient-focused measure to assess quality of life of adolescents with skin diseases. Br J Dermatol 2018; 178: 161-175.

Golics CJ, Basra MKA, Finlay AY, Salek MS.  Adolescents with skin disease have specific quality of life issuesDermatology 2009; 218: 357-363.

 

PDI

Finlay AY, Kelly SE. Psoriasis – an index of disability. Clinical and Experimental Dermatology, 1987; l2: 8-ll.

Finlay AY, Coles EC. The effect of severe psoriasis on the quality of life of 369 patients. Br J Dermatol, 1995; 132: 236-244.

Lewis VJ, Finlay AY. Two Decades Experience of the Psoriasis Disability Index. Dermatology, 2005; 210: 261-268.

 

DFI

Lawson V, Lewis-Jones MS, Finlay AY, Reid P, Owens RG. The family impact of childhood atopic dermatitis: the Dermatitis Family Impact Questionnaire. Br J Dermatol, 1998; 138: 107-113.

Beattie P E, Lewis-Jones M S.  An audit of the impact of a consultation with a paediatric dermatology team on quality of life in infants with atopic eczema and their families:  further validation of the Infants’ Dermatitis Quality of Life Index and Dermatitis Family Impact Score. Br J Dermatol 2006; 155: 1249-1255.

Dodington SR, Basra MK, Finlay AY, Salek MS. The Dermatitis Family Impact questionnaire: a review of its measurement properties and clinical application. Br J Dermatol 2013; 169: 31-46.

 

IDQOL

Lewis-Jones M S, Finlay A Y, Dykes P J. The Infants’ Dermatitis Quality of Life Index. Br J Dermatol 2001 144: 104-10

Beattie P E, Lewis-Jones M S.  An audit of the impact of a consultation with a paediatric dermatology team on quality of life in infants with atopic eczema and their families:  further validation of the Infants’ Dermatitis Quality of Life Index and Dermatitis Family Impact Score. Br J Dermatol 2006; 155: 1249-1255.

Basra MK, Gada V, Ungaro S, Finlay AY, Salek SM. Infants’ Dermatitis Quality of Life Index: a decade of experience of validation and clinical application. Br J Dermatol. 2013; 169: 760-8.

 

CADI

Motley RJ, Finlay AY. Practical use of a disability index in the routine management of acne. Clinical and Experimental Dermatology, 1992; 17: 1-3

Dreno B, Finlay A Y, Nocera T et al. CADI cultural and linguist validation into French of an acne disability index. Dermatology 2004; 208: 104-108.

 

PFI-14

Basra MK, Zammitt AM, Kamudoni P, Eghlileb AM, Finlay AY, Salek MS. PFI-14©: a Rasch analysis refinement of the Psoriasis Family Index. Dermatology 2015; 231 (1): 15-23.

 

FDLQI

Basra MKA, Sue-Ho R, Finlay A Y. Family Dermatology Life Quality Index: measuring the secondary impact of skin disease. Br J Dermatol 2007; 156: 528-538. Erratum: Br J Dermatol 2007;156 :791.

MKA Basra, O Edmunds, MS Salek, AY Finlay. Measurement of family impact of skin disease: further validation of the Family Dermatology Life Quality Index (FDLQI). J Eur Acad Dermatol Venereol 2008. 22: 813-821.

Higaki Y, Tanaka M, Futei Y, Kamo T, Basra MKA, Finlay AY. Japanese Version of the Family Dermatology Life Quality Index: translation and validation. Journal of Dermatology 2017; 44(8): 914-919.

 

FROM-16

Golics CJ, Basra MK, Finlay AY, Salek S on behalf of the Family Quality of Life Research Group. The development and validation of the Family Reported Outcome Measure (FROM-16)© to assess the impact of disease on the partner or family member. Quality of Life Research 2014; 23: 317-26.

Golics CJ, Basra MKA, Salek MS, Finlay AY. The impact of patients’ chronic disease on family quality of life: an experience from 26 specialties. International Journal of General Medicine 2013; 6: 787-798.

QOL

Further Information

For general queries, technical aspects and permission to use:

E-mail: dermqol@cf.ac.uk

Other contacts:

Mrs Joy Hayes (financial aspects):
HayesJ@cf.ac.uk

Professor Andrew Y Finlay:
FinlayAY@cf.ac.uk

Address:
Department of Dermatology
Cardiff University School of Medicine
Heath Park, Cardiff
CF14 4XN
United Kingdom
Tel: +44 (0)29 2074 2884
Fax: +44 (0)29 2074 4321

FAQs

Quality of Life FAQs

Publications

Key References
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